Monday, March 23, 2020

IV grenade

I finished my IV antibiotics the other day and realized I hadn't posted any information about it.

My port was accessed at infusion and the needle was left in for the week then they changed the needle for the second week.

Everyday, I flushed the port with saline then attached the IV grenade. It had to run for 27 minutes. When it was done, I had to flush my port with saline again and then flush it with heparin before attaching an orange antibacterial cap.


Here's a picture of the IV grenade


Saturday, March 7, 2020

Plans go awry

The plan was to have a needle aspiration on Tuesday 3/3 at 1 pm. That didn't happen.

Tuesday morning, I woke around 4:30 am and realized something was ... well, off. My thought was that the freezer pack had leaked, but then I remembered putting it in the freezer. Dammit, my ostomy must've leaked! I turned on the light and pulled back the covers to see how much of a mess I had. Imagine my horror when I see bloody, smelly pus all over me and the bed including the pillow! The fluid build up had decided self aspirate at the site of the old ileostomy. I grabbed the towel that I  had used between the ice pack and my skin so I wouldn't ooze everywhere, rinsed off, grabbed a dry towel(first one was pretty saturated), threw on some sweats, grabbed another clean towel, and called 911. In the ambulance, they gave a 5"x9" abdominal pad to use instead of the towel. By the time we got to the hospital about 10 miles away, THAT was soaked too. I got to the hospital about 5:30 am.

 I spent the day in the ER getting IV antibiotics, CT scan, blood work, would cultures and I soaked 4 more pads before being admitted and getting a room at 6:45 pm. Wednesday, the wound care nurse came to see me. She looked at it, gently touched it, and took measurements. There are 4 holes on my waist. They are spread over an area that's about 1" x5". Three of the holes are large enough to stick a Q-tip into (I know because she did when she was measuring the depth). The fourth one is smaller, maybe the size of the Q-tip shaft. Thankfully, she didn't try to insert anything into it. She put a dressing on it and gave me care instructions for when I got home. The infectious disease doctor also came to see me Wednesday evening. He asked me all sorts of questions about happened, my history of MRSA and my antibiotic allergies. He mentioned take home IV antibiotics, describing a small device "about the size and shape of a grenade" .  In the ER, they had been giving me clindamycin. Wednesday morning, my gynecological oncologist had me switched to levofloxacin. Wednesday evening, the infectious disease doctor had me switched to vancomycin. Thursday, they added mupirocin ointment for the MRSA in my nose. The infectious disease doctor came back Thursday afternoon to tell me that the wound was negative for MRSA but positive for skin bacteria. He switched me to daptomycin and had the first dose given to me at the hospital to make sure I wasn't allergic. I was discharged Thursday evening.

Friday, my IV supplies were delivered and a nurse came out to teach me how to use everything. I'll write a separate entry about the IV system later.  On Monday, a wound care nurse is coming out to check on me.