Saturday, October 5, 2019

New chemo

All of my incisions have healed. I did have an infected ingrown hair that had to be lanced and drained. I was on Levofloxacin(antibiotic) for a week and had to take a sitz bath at least once a day to help it drain. The good news is that I found an antibiotic that I'm not allergic to and that I can get in and out of the tub with the new bag placement.

I started on a new chemo on October 3. It's called Anastrozole. It's a 1mg tablet that I take every day. Yes, at home. 😀 I also only need to see my medical oncologist once a month. My gynecological oncologist is still every 3 months.

Sunday, August 11, 2019

New post op pics

Here's me without staples or drains.  The open area on my  lower abdomen is from where the doctor took out a few staples to encourage drainage. Now I have to clean and pack it with gauze twice a day.


Monday, August 5, 2019

Staple and drain free

Today I got all of the staples and drains out. I still have some drainage and one area that needs to be packed twice a day. I go back on the 20th for a check up.

Thursday, August 1, 2019

Home again

After going back to Mercy on Saturday, I got another JP drain installed. This one is on my left side to help drain the abscesses. They kept me overnight to be safe. I got home on Tuesday afternoon and I didn't even have to take a Lyft! My sister was able to leave work early and come pick me up.

 I have to go in Monday for 2 appointments. One is to get the staples out and possibly the right JP drain as well. The second is to get the left JP drain replaced. Apparently I'll have that one for about a month and it will be changed weekly.

 Thankfully, this county has a Medical Assistance Transportation Program for those of us on Medicaid so I don't have to sweat getting the 60 miles to and from scheduled doctors appointments in Baltimore. The ones the are here in the county are much easier to get to.

Saturday, July 27, 2019

Back at Mercy

Last night, I started having very severe abdominal. The pain level was about a 9, so I had Mom take to the ER. After a nearly 4 hour wait, I was finally given a room. They had done a CT while we were waiting. The CT results showed that abscesses in my abdomen. Calvert called Drs. Ryu & Gushchin. They were able to get hold of Nick(one of Gushchin's PAs) who basically said send her up. Calvert finally got transportation arranged around 1pm and the AAA Transport ambulance brought me to Mercy.

Friday, July 26, 2019

Back home

I got home around 5:30 last night. I'm still in a lot of pain but I'm trying to stay away from the opioids. Last night, I broke down and took a Tramadol. OMG, I was dripping with sweat, had a rapid heart rate and increased breathing I thought I was going to die! I wish I had my fitness tracker on so I could see how fast my heart rate had gotten, but it charging. After about 30 minutes, I was ok but it barely affected the pain. So not worth it! Should I have gone to the ER? Probably, but hindsight is 20/20 and I'm ok. I think I'll stick to Aspercreme with lidocaine or a heating pad for topical and medical marijuana for internal.

Saturday, July 20, 2019

More post op pics

I'm feeling very bloated and sore today. Hemoglobin is low. They want to give me 2 units of blood today to see if that helps.
This is the area around my JP hook. The staples are from the ileostomy that they removed. o

Some post surgical pictures

The bruises were caused by needles from IVs & blood cultures. I'm positive for MRSA again & they found bacteria in my gut that's Graham positive.

Thursday, July 18, 2019

Another update

After "seizure", the doctors did a head & chest CT. The next day, I had MRI of my head as well as an EEG. The surgeon came up that afternoon and said they could see my brain but nothing wrong with it.

Tuesday, July 16, 2019

Post op update

Apparently the surgery went well. I still have a bag but it's a colostomy now. I have tubes everywhere. This morning around 6, I had a small seizure but I'm ok now. They did a CT on my head and chest and found clot on my lung. They started me on a Heparin drip.