ER follow up

I went back to the ER per instructions to get my finger rechecked. They said it looks better and to keep soaking it and taking the antibiotics. I was in and out in about a half hour.

Paronychia

That's the medical term for an infection near a fingernail or toenail. I'm suppose to soak it several times a day in hot water and Epsom salt. They also gave me Keflex. I'm so glad to be back home.

Infected hangnail

I had a hangnail that tore and is now infected with a red line going to my wrist. I called my oncologist who told me to call my primary. She told me to come to the ER for IV antibiotics because she wasn't sure oral antibiotics would work because of the chemo. So I'm waiting to be called back.

Last chemo

I know I haven't been posted much, but I get tired of posting about the side effects all the time. Anyway, today was the last chemo. I have labs in 2 weeks & Dr. Ryu the week after that. I'm guessing that he will want more tests. Fun, fun

Kudos to the purse holders

I didn't write this. I found it on a Facebook group called Sisterhood of Ovarian Cancer Survivors. My purse holder is an absolute Godsend.



KUDOS TO THE PURSE HOLDERS!

You know they are there-we see them everywhere in our CANCER WORLD. They are the spouses and partners who sometimes smile back as we pass from waiting rooms to treatment areas. They are our silent soldier sentinels in this uninvited often terrifying life of ovarian cancer treatment.

Like ourselves, they are bewildered and often stunned at immersion into CANCER WORLD. They spend days and hours offering support, drinking lousy cafeteria coffee, watching their own lives also tick by. Some of them find purpose taking notes, making sure appointments are confirmed, doing additional research. They also help us shuffle along to the car, adjust our seats, make sure we are well supplied with alkaline water, etc.

My own purse holder has been snatched from the dreams of bucket list retirement adventures to having his whole world defined by the course of my disease. He too suffers in CANCER WORLD. The retirement adventures he dreamed of have been squelched or at least shelved.

Instead, while purse holding, he has muscled through the 3000 pages of THE LAST LION—fittingly about Churchill’s “never, never, never give up” spirit. He has engaged in numerous open discussions about the end of my life—at least I get to decide on where, right?

For both of us, the gut punches would take a thousand purses to fill. He is right there with me as we talk with our children, friends, relatives—and carries the stress in the noblest of ways.

Like many men, my purse holder is a deep and quiet ponderer as opposed to my constant chatter and processing. The disease’s silent shadow is always there as he stoically carries on.

Purse holders are everywhere. Just yesterday I watched one down on his knees next to his wife’s chemo infusion chair. When I commented “you sure know how to display love”, this large man thanked me as tears ran down his face.

Just think of all the things our purse holders do!? They take notes, change bandages, give injections, keep water bottles filled, try to cook, HOLD HANDS, HUG, and support us as both our hearts break. They also manage visitors, share updates and try to keep their own sanity grounded.

Getting to share joy, sunsets, jokes fill up our purse holders as much as ourselves. We try to focus on the AWESOME WORLD Mother Nature keeps providing: clouds, birds, water - all refill our often numb spirits. Seeking out large vistas also seems to help.

Above all, my purse holder has earned sainthood for his implacable tolerance of my moods. This disease sure can rip my “natural charm” to shreds. Often I fly from joy to deep angst within one minute. “Living for the moment” seems great, though I suspect only dogs truly practice this. Yet, my purse holder shoulders us through it.

Who knew we would be lucky enough to have purse holders willing to journey along with us? These guys deserve so much more than a cold beer and hug. My “kudos” to my own purse holder is for how gently he supports my baffling diseased life. You say?

Genetic testing

I got my genetic testing (including BRCA) done today. It'll be 2-4 weeks for the results.

Belated Merry Christmas

I just wanted to wish everyone a belated merry Christmas. Thanks for all the well wishes and moral support. This last round of chemo was rougher on me than the first two were. I don't know how much of it is the chemo, the weather or a combination of things. I hope everyone has a happy new year.

All gone

All the hair on my head is gone. I'm starting lose my eyelashes. On the plus side, I haven't needed to shave in about a month.

Wigs and scarves

I got a couple of wigs, some scarves and a hat from a nurse at the Breast Center yesterday. I had also gotten a bunch of scarves from Mom. I uploaded pictures of the wigs. I need figure out styling for the blonde wig. I need to take pictures of the scarves.

First days after chemo - round 2

I had chemo on Wednesday. Thursday wasn't bad. I was more tired than anything, Yesterday and today were more painful. The prescriptions (Ibuprofen for pain and Neurontin for tingling) I got seem to be helping plus this time I have some idea what to expect.

I'm still losing my hair but I don't mind not having to shave my legs. I'll try to post more pictures soon.